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Congenital Central Hypoventilation Syndrome

Congenital Central Hypoventilation Syndrome (CCHS) is a rare genetic condition which affects the automatic control of breathing. It is “congenital” as babies mainly are born with this condition and “central” because it involves the central nervous system. CCHS may not be immediately obvious in an emergency. It is crucial to alert emergency responders to the condition and any other medical needs to enable rapid and appropriate diagnosis and treatment. Necklaces and bracelets are worn at pulse points where medical responders would check vitals.


Medical ID jewellery gives the wearer independence as the ID communicates, especially in an emergency, when the wearer is unable to speak for themself. Our bracelets and necklaces feature the well-known medical alert symbol and can be engraved with the wearer’s details. The personalised engraving can also warn of associated risks, complications, and any special care that the wearer needs. There are lots of medical IDs to choose from so you can select the style that best suits you and your lifestyle, from casual to more stylish designs. To help you choose, we’ve curated a CCHS range of medical IDs where you'll find ID cards, wristbands, necklaces, bracelets and handy medicine bags. Our CCHS range includes medical IDs that allow you to engrave up to 5 lines of text so you can cover all your conditions, or you could choose to list additional information on a  medical ID card.
All prices include free engraving and free UK mainland delivery.

What Should You Put on a CCHS Medical ID? 

It is always best to consult with your doctor or specialist to decide what to engrave on your CCHS medical ID. If this is not possible, we have taken advice from the lovely people at CCHS UK (a registered charity providing support for people affected by CCHS throughout the UK) and recommend the following:
As a minimum, you should put the following on your CCHS medical ID:

  • Your CCHS diagnosis, e.g. Central Congenital Hypoventilation Syndrome, Does not breathe
  • when asleep or unconscious
  • Needs ventilation OR mask ventilation OR diaphragm pacer
  • Your primary ICE (in case of emergency) number
  • You may also want to include the following:
  • Your name
  • Any other severe medical conditions (including allergies)
  • Any medications you may be on
  • “See medical card” (if you choose to carry a medical ID card in your phone case or wallet).

If you choose a medical ID bracelet that can be engraved on both the front and the back, we recommend that you engrave your medical information on the front and your personal information (name and ICE) on the back.

General advice on engraving:

  • Information should relate to conditions not otherwise discoverable by examination of an
  • unconscious or incapacitated patient
  • Important medications should be listed
  • Information should be relevant to life-saving or emergency treatment
  • Avoid using general terms, e.g. “Allergies: bee stings, nuts” is much more useful than just
  • “Allergies”

CCHS Wristbands

Soft, silicone wristbands are a popular as they’re comfortable and convenient to wear throughout the day and evening, indoors and out. We have many different colours you can choose from with inside engraving or outside engraving and we also offer smaller wristbands for children. Our Velcro and Silicone ranges are great if you like to stay active.


CCHS Bracelets

We have a huge range of bracelets to choose from: from everyday wear to special occasions. Our pure links titanium bracelet is an elegant choice. Our modern medical bracelets with clasp are very popular with six colours to choose from and plenty of room for your engraving. As well as our bracelets, we also offer watch style SOS Talismans that allow the wearer to write their details onto an information strip and store inside the SOS capsule, great for individuals whose details or medications might change frequently.


CCHS Syndrome Necklaces

If you would prefer to wear a necklace, our EDS dog tags offer a subtle and stylish way to display important data. Choose from brushed steel or coloured designs created for men and women.
Our SOS Talisman and Infomedic necklaces are also a convenient way of keeping details of your condition with you at all times. Keep your data safely tucked away inside the unique pendant.


Kids and Young Adults

It’s not always easy to persuade little ones to wear medical IDs so we have a great range of medical IDs for children: from colourful silicone bands to fabric wristbands and necklaces. Many of our engravable medical ID bracelets are also available in a variety of sizes from 5 inches (12.7cm) to suit even young children. Older children can shop our entire range as we offer bracelets and wristbands in a choice of sizes. Style conscious teens will be spoilt for choice with cool leather braidstrendy beaded bracelets and brightly coloured silicone bands. You can even future proof against a growing spurt by choosing an adjustable wristband or bracelet that will grow with them or a traditional dog tag necklace. 


CCHS Medicine bags and ID Cards 

If you regularly carry medication, our medicine bags and carry cases are perfect for keeping your medication safe. They're also great for traveling and when you go on holiday. As well as your CCHS alert jewellery, it's also a good idea to have a medical ID card for your wallet or phone. This allows you to carry more detailed information with you, such as your address and NH number. If you purchase one of our ID cards alongside a necklace or bracelet, we normally advise having 'see medical card&' engraved on your chosen piece of jewellery. Start collecting your favourite medical ID jewellery from our online range today.

 

  • Medical Flatband (Inside Engraving)
    Rapid Dispatch included RAPID DISPATCH

    Medical Flatband (Inside Engraving)

    Our resizeable silicone flatbands are a great and comfortable way to wear your medical ID. They are

    £15.95

  • Generic Medical Identity Card
    Rapid Dispatch included RAPID DISPATCH

    Generic Medical Identity Card

      In some cases, your medical ID bracelet or necklace simply cannot provide enough information

    £9.22

  • Medical Bracelet with Clasp
    Rapid Dispatch included RAPID DISPATCH

    Medical Bracelet with Clasp

    A fantastic, stylish yet robust bracelet featuring a wide silicone strap with extra strong double sa

    £25.95

  • Celtic Knot Bracelet
    Rapid Dispatch included RAPID DISPATCH

    Celtic Knot Bracelet

    A stunning stainless steel medical ID bracelet, with a Celtic knot design and a slimline tag featuri

    £38.95

  • Black Medical Dog Tag - Filled
    Rapid Dispatch included RAPID DISPATCH

    Black Medical Dog Tag - Filled

    A lightweight aluminium dog tag complete with black rubber silencer and 26 inch chain.These colourfu

    £16.22

  • Paired Hearts Bracelet
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    Paired Hearts Bracelet

    A dainty medical ID bracelet, made up of a combination of filled and hollow heart shaped links.Provi

    £38.95

  • Maroon Medical Dog Tag - Filled
    Rapid Dispatch included RAPID DISPATCH

    Maroon Medical Dog Tag - Filled

    A lightweight aluminium dog tag complete with black rubber silencer and 26 inch chain.These colourfu

    £16.22

  • Lightweight Oval Bracelet
    Rapid Dispatch included RAPID DISPATCH

    Lightweight Oval Bracelet

    A lightweight, stainless steel engraveable bracelet comprised of a delicate linked chain and a small

    £19.95

  • Slimline Adjustable Silicone
    Rapid Dispatch included RAPID DISPATCH

    Slimline Adjustable Silicone

    These bright and colourful silicone straps with an engraveable metal tag are a great and comfortable

    £33.95

  • Heart Engraveable Charm
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    Heart Engraveable Charm

    A beautiful heart shaped charm with a lobster clasp. Available in stainless steel or gold.We can eng

    £18.95

  • Slimline Titanium
    Rapid Dispatch included RAPID DISPATCH

    Slimline Titanium

    A slimline titanium engraveable bracelet with distinctive patterned links. Provided with a free pres

    £58.95

  • The Woven Hearts Bracelet
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    The Woven Hearts Bracelet

    A stunning stainless steel medical ID bracelet, made up of layered heart shaped links and a slimline

    £38.95

  • Black Medical Dog Tag - Outline
    Rapid Dispatch included RAPID DISPATCH

    Black Medical Dog Tag - Outline

    A lightweight aluminium dog tag complete with black rubber silencer and 26 inch chain.These colourfu

    £16.22

  • Sale
    Kids Fabric Medical Wristband
    Rapid Dispatch included RAPID DISPATCH

    Kids Fabric Medical Wristband

    Our Safety / Medical Wristbands take a fresh approach compared to the medical alert wristbands alrea

    Was: £14.95
    Now: £12.95

  • Sale
    10mm Leather Bracelet With Gold Tag
    Rapid Dispatch included RAPID DISPATCH

    10mm Leather Bracelet With Gold Tag

    The 10mm Leather Bracelet is a leather ID Bracelet with a beautiful gold plated medical ID tag with

    Was: £38.95
    Now: £19.95

  • The Braided Bracelet
    Rapid Dispatch included RAPID DISPATCH

    The Braided Bracelet

    This delightful bracelet is made from braided leather with a stainless steel tag.Provided with a fre

    £34.95

  • The Multi Shaped Links Bracelet
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    The Multi Shaped Links Bracelet

    A stainless steel medical ID bracelet, featuring a combination of square and oval links and a medica

    £41.95

  • Adjustable Mesh Bracelet
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    Adjustable Mesh Bracelet

    A simple yet stylish medical ID bracelet, featuring a stainless steel tag with an adjustable metal m

    £38.95

  • Brushed Medium Medical Pendant
    Rapid Dispatch included RAPID DISPATCH

    Brushed Medium Medical Pendant

    A fantastic medical ID pendant featuring a brushed rounded rectangle tag with the international medi

    £34.95

  • Pure Links Titanium
    Rapid Dispatch included RAPID DISPATCH

    Pure Links Titanium

    A truly fantastic titanium engraveable bracelet with distinctive links and the internationally recog

    £58.95

  • Slim Heart Engraveable Charm
    Rapid Dispatch included RAPID DISPATCH

    Slim Heart Engraveable Charm

    A beautiful slim heart shaped stainless steel charm with a lobster clasp attached.We can engrave up

    £18.95

  • The Cross Link Bracelet
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    The Cross Link Bracelet

    A light-weight stainless steel medical ID bracelet, made up of cross shaped links and a slimline tag

    £38.95

  • Premier Chain Gold Dog Tag
    Rapid Dispatch included RAPID DISPATCH

    Premier Chain Gold Dog Tag

    A fantastic medical ID pendant featuring a highly polished gold plated front with decorative edging

    £36.95

  • Interwoven Flat Chain
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    Interwoven Flat Chain

    A delightful bracelet featuring a very attractive interwoven flat linked chain and a stainless steel

    £41.95

  • The Triple Woven Chain Bracelet
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    The Triple Woven Chain Bracelet

    A stainless steel medical ID bracelet, formed from the interweaving of 3 strands of links embossed w

    £41.95

  • Traditional Titanium
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    Traditional Titanium

    A more traditional style titanium engraveable bracelet with titanium links and engraveable tag.Provi

    £58.95
  • Stainless Steel Striped Bracelet
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    Stainless Steel Striped Bracelet

    A beautiful engraveable bracelet with two distinctive stainless steel lines running through the midd

    £38.95

  • Universal Fit Worker ID
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    Universal Fit Worker ID

    The "Universal ID" is perfect for a wide variety of work places and enviroments, suiting workers in

    £8.87
  • Sale
    Red Medical Charm with Chain Bracelet
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    Red Medical Charm with Chain Bracelet

    A classic stainless steel chain bracelet featuring a traditional engraveable circular charm. Each br

    Was: £18.95
    Now: £12.92

  • Kids Dinosaur Engraveable Bracelet
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    Kids Dinosaur Engraveable Bracelet

    This childrens medical ID bracelet features a soft rubber strap with bright cartoon dinosaurs.These

    £25.95

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